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News story – Social care leaders unite to improve public involvement in research

Funders, regulators and research organisations who play an important role in the UK health and social care research have come together, working with members of the public, to sign up to a bold new shared commitment to improve public involvement in research - and Brunswick Supported Living fully endorse the move.

The Medicines and Healthcare products Regulatory Agency, the Health Research Authority, the National Institute for Health Research and a host of organisations across the UK to bring about changes which will drive up standards in health and social care research.

They include: the Academy of Medical Sciences, the Association of the British Pharmaceutical Industry, the Association of Medical Research Charities, Chief Scientist Office, Health and Care Research Wales, Health and Social Care Northern Ireland, Medicines and Healthcare products Regulatory Agency, the Medical Research Council, the National Coordinating Centre for Public Engagement, NHS Research Scotland, Universities UK and UK Research and Innovation.

The statement, signed by leaders at each organisation, reads:

‘Public involvement is important, expected and possible in all types of health and social care research. Together our organisations and members fund, support and regulate health and social care research. This statement is our joint commitment to improve the extent and quality of public involvement across the sector so that it is consistently excellent.

People have the right to be involved in all health and social care research. Excellent public involvement is an essential part of health and social care research and has been shown to improve its quality and impact. People’s lived experiences should be a key driver for health and social care research.

When we talk about public involvement, we mean all the ways in which the research community works together with people including patients, carers, advocates, service users, and members of the community. Excellent public involvement is inclusive, values all contributions, ensures people have a meaningful say in what happens and influences outcomes, as set out in the UK Standards for Public Involvement.

Working together we will support the research community to carry out excellent public involvement. We will provide or share guidance, policies, systems, and incentives. We will:

  • listen to and learn from the people and communities we involve and apply and share that learning
  • build and share the evidence of how to involve the public and the impact this has
  • support improvements in equality, diversity, and inclusion in public involvement
  • promote the UK Standards for Public Involvement.

We will embed this commitment into the decision-making processes of our organisations.’

Andrew Knight, general manager at Brunswick Supported Living, said; "This is a great initiative. It means that the authorities responsible for Social Care standards and policy are changing to a bottom-up approach with their research. They have committed to finding out what it's like to give and receive support in the community, as it were 'at the coalface', instead of taking a top-down academic approach. We fully support this initiative."

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